What is Norrie Disease?
Norrie Disease is a rare, genetic condition that causes blindness from birth or early infancy, progress hearing loss usually in childhood or early adolescence... read more.
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Your contribution helps the Norrie Disease Foundation Australia provide essential support, fund vital research, and improve outcomes for individuals and families impacted by Norrie Disease... read more.
News, Events & Blog
Recent Articles
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The U.S. Food and Drug Administration has approved the first ever gene therapy for hearing loss. Otarmeni is a treatment for people with severe-to-profound hearing loss caused by changes in the OTOF… - 20 May 2026, 6:21 pm | News
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Join us for a classic Bunnings Sausage Sizzle at Bunnings Altona and help support the Norrie Disease Foundation Australia! All funds raised on the day will go directly towards funding vital research… - 12 Jan 2026, 12:21 pm | Events
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The Norrie Disease Foundation Australia (NDFA) is pleased to share that individuals and families affected by Norrie Disease will have the opportunity to participate in The Aussie Ear Bank, a national… - 21 Nov 2025, 2:20 pm | News
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When our son was diagnosed with Norrie Disease, we began preparing ourselves for vision loss. What we didn’t expect were the feeding difficulties. In fact, none of the specialists we saw had ever… - 17 Sept 2025, 7:42 pm | Blog
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